Invisible Illness

A moving cultural history of disabilityand a powerful call to action to change how our medical system and society supports those with complex chronic conditions From lupus to Lyme, invisible illness is often dismissed by everyone but the sufferers. Why does the medical establishment continually insist that, when symptoms are hard to explain, they are probably just in your head? Inspired by her work with long COVID patients, medical anthropologist Emily Mendenhall traces the story of complex chronic conditions to show why both research and practice fail so many. Mendenhall points out disconnects between the reality of chronic diseasewhich typically involves multiple intersecting problems resulting in unique, individualized illnessand the assumptions of medical providers, who behave as though chronic diseases have uniform effects for everyone. And while invisible illnesses have historically been associated with white middle-class women, being believed that you are sick is even more difficult for patients whose social identities and lived experiences may not align with dominant medical thought. Weaving together cultural history with intimate interviews, Invisible Illnessupholds the experiences of those living with complex illness to expose the failures of the American healthcare systemand how we can do better.